Around the United States, families are getting ready for the first weeks of school. Our family is in the middle of helping our oldest son re-enter mainstream school after a semester of medical leave, while also preparing our daughter to begin kindergarten. As soon as August arrived, we felt the stress rise.
Advice from Parents
Goodbye Summer Summer days are coming to an end. Whether your summer was schedule-free, completely structured or somewhere in between, the beginning of the school year brings change and transition. Part of me is very ready for this transition. The other part of me is trying to soak in what’s left of our summer vacation […]
Three years ago, I was pregnant with our youngest of three. We lived in a small house with many diagnoses under one roof‑including autism, ADHD, a connective tissue disorder, hypotonia, anxiety, Crohn’s, Celiac’s, and severe food allergies. Many of the diagnoses were new and we had upwards of sixteen therapies and appointments per week to […]
There is judgment that comes with being a parent. There is judgment that comes with being a parent of child with special needs; a child who continually throws sand at the playground, can’t sit during mealtime, doesn’t answer when you ask a question (over…and over….and over again), or kicks and screams when things don’t go […]
This past week, our family traveled from Boston, MA to Atlanta, GA. We made our way south and back by plane, train, bus, and car…and lived to tell the tale! Traveling with a special needs child can feel overwhelming, but it doesn’t have to be. Here are some useful tips to make your travels smooth sailing this summer.
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.
This week, we received a secondary diagnosis for my son. It’s been a very hot week. It’s the end of the school year. He’s going through a growth spurt. Is everyone getting enough sleep? I think there’s too much sugar in our diets. We should probably cut back on screentime. Physical play is always good. […]
When our son Jack developed a mysterious illness in November of last year, our world turned upside down. Our once funny, vibrant, energetic boy could hardly get out of bed. Within a few short weeks, he was no longer able to attend school or participate in activities he had once loved. Over the course of […]