There is judgment that comes with being a parent. There is judgment that comes with being a parent of child with special needs; a child who continually throws sand at the playground, can’t sit during mealtime, doesn’t answer when you ask a question (over…and over….and over again), or kicks and screams when things don’t go […]
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.
This week, we received a secondary diagnosis for my son. It’s been a very hot week. It’s the end of the school year. He’s going through a growth spurt. Is everyone getting enough sleep? I think there’s too much sugar in our diets. We should probably cut back on screentime. Physical play is always good. […]
In November 2016, our oldest son became very ill. His symptoms were physical at first, starting with his gastrointestinal system. Within a month, he was experiencing neuropsychiatric episodes. Within two months, his condition was so severe he was no longer able to attend school.
As I mentioned in this recent post, giving time to your special needs child’s siblings each day is important. But what happens when emergency strikes? How do you balance time with each of your children when a hospitalization or medical emergency comes into play?
THURSDAY, MARCH 30 (7:00pm-8:30pm) The Boston Public School Special Education Parent Advisory Council (SpedPac) invites parents and caregivers of students with disabilities to attend their General Meeting. This workshop will feature presentations from Exceptional Lives, Boston Children’s Hospital, and TILL.
Love is a powerful emotion. It binds us together and guides us through even the darkest of times. What happens when you lose someone you love, though? And how do you grapple with the grief of that loss? Further, how do you help your child with special needs manage their emotions when they lose someone […]
Community Rowing, Inc. (CRI) is looking for new participants for their ongoing rowing program for people with disabilities. This USOC Paralympic Sports-approved rowing club offers recreational and competitive programs for people with physical and cognitive disabilities in the Greater Boston area.