women stressed with chalk drawing

I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.

Children playing in woods

This week, we received a secondary diagnosis for my son. It’s been a very hot week. It’s the end of the school year. He’s going through a growth spurt. Is everyone getting enough sleep? I think there’s too much sugar in our diets. We should probably cut back on screentime. Physical play is always good.

Adaptive sports bike riding

June 17th, 2017 (11am-3pm) – All ages, abilities, and physical and cognitive challenges are invited to this year’s Adaptive Sports Fair at Spaulding Rehabilitation Center in Brewster, MA. Attendants will experience hands on exhibits and demonstrations that showcase the many types of equipment and fun available through the McGraw Center Adaptive Sports Programs.

The Parent/Professional Advocacy League (PPAL) is a statewide, grassroots family organization that advocates for improved access to mental health services for children, youth, and their families. Please join them for a day of connecting, learning, and sharing with families and professionals from across Massachusetts.

Child holding road map

In November 2016, our oldest son became very ill. His symptoms were physical at first, starting with his gastrointestinal system. Within a month, he was experiencing neuropsychiatric episodes. Within two months, his condition was so severe he was no longer able to attend school.

Paper cutout of family in hands

Moms of Amazing Kids will host a complimentary presentation on Special Needs Trusts & Mass Health for those with loved ones with disabilities. The event is free and open to the public. Learn more about the event, with the following message from the organization:…

Child in hospital bed

As I mentioned in this recent post, giving time to your special needs child’s siblings each day is important. But what happens when emergency strikes? How do you balance time with each of your children when a hospitalization or medical emergency comes into play?

Boston SPEDPAC Logo

THURSDAY, MARCH 30 (7:00pm-8:30pm)

The Boston Public School Special Education Parent Advisory Council (SpedPac) invites parents and caregivers of students with disabilities to attend their General Meeting. This workshop will feature presentations from Exceptional Lives, Boston Children’s Hospital, and TILL.

Mother holding sad daughter in arms

Love is a powerful emotion. It binds us together and guides us through even the darkest of times. What happens when you lose someone you love, though? And how do you grapple with the grief of that loss? Further, how do you help your child with special needs manage their emotions when they lose someone they love?

Para rowing - two females on water

Community Rowing, Inc. (CRI) is looking for new participants for their ongoing rowing program for people with disabilities. This USOC Paralympic Sports-approved rowing club offers recreational and competitive programs for people with physical and cognitive disabilities in the Greater Boston area.