Doctor consults a young couple

When our son Jack developed a mysterious illness in November of last year, our world turned upside down. Our once funny, vibrant, energetic boy could hardly get out of bed. Within a few short weeks, he was no longer able to attend school or participate in activities he had once loved. Over the course of the past six months,

Doctors listening to child's heart

The US Medicaid program requires that all states must screen and treat Medicaid-eligible children for mental health issues. But that wasn’t always the case in Massachusetts.

Affordable Care Act patient book

The House Republicans passed a bill last week to overhaul the Affordable Care Act. While the bill must still obtain Senate approval to move forward, it contains several provisions that are concerning to the disability community.

Paper cutout of family in hands

Moms of Amazing Kids will host a complimentary presentation on Special Needs Trusts & Mass Health for those with loved ones with disabilities. The event is free and open to the public. Learn more about the event, with the following message from the organization:…

Child in hospital bed

As I mentioned in this recent post, giving time to your special needs child’s siblings each day is important. But what happens when emergency strikes? How do you balance time with each of your children when a hospitalization or medical emergency comes into play?

Today we are pleased to publish our new user-friendly Exceptional Lives Resource Directory, a searchable online database of disability programs and providers in Massachusetts.

Mother and father playing with son

Haverhill, January 11, 2017 — This workshop is for those exploring various living options for their adult family member with a disability. Adult Family Care (AFC) is a MassHealth-funded program that supports and financially assists live-in caregivers for those who are unable to live alone and are eligible for either MassHealth or Medicaid.

Partners for Youth with Disabilities logo

As way to connect with our growing community, we continue to lead Guide workshops for parents and caregivers with children and adults with disabilities. We visit with support groups, parent groups, and other organizations in the disabilities community, so we can hear people’s concerns, questions, and perspectives firsthand.

Health care for all graphic

Bostonian parents of children with special needs have a unique opportunity to meet other parents on Thursday, September 29th from 11:30 a.m. to 1:30 p.m. Health Care for All and the Federation for Children with Special Needs are hosting this event at the Sullivan Square T Station to give parents a chance to share stories with each other and learn more about the health care issues most important to their families.

Kid and adult high fiving

The open enrollment period for the Children’s Autism Medicaid Waiver is taking place from October 17-31, 2016. A waiver is a type of support that helps people get services in their home or community.

What is the Children’s Autism Medicaid Waiver?

This waiver covers extra services that are meant to help children diagnosed with an autism spectrum disorder (ASD).