This week, our son Jack returned to school after 6 months of medical leave. In November 2016 he developed an infection that led to PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). As time went on, we learned that strep was not the only trigger for the flares, and he was diagnosed with both PANDAS and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), […]
Around the United States, families are getting ready for the first weeks of school. Our family is in the middle of helping our oldest son re-enter mainstream school after a semester of medical leave, while also preparing our daughter to begin kindergarten. As soon as August arrived, we felt the stress rise.
There is judgment that comes with being a parent. There is judgment that comes with being a parent of child with special needs; a child who continually throws sand at the playground, can’t sit during mealtime, doesn’t answer when you ask a question (over…and over….and over again), or kicks and screams when things don’t go […]
This past week, our family traveled from Boston, MA to Atlanta, GA. We made our way south and back by plane, train, bus, and car…and lived to tell the tale! Traveling with a special needs child can feel overwhelming, but it doesn’t have to be. Here are some useful tips to make your travels smooth sailing this summer.
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.
The US Medicaid program requires that all states must screen and treat Medicaid-eligible children for mental health issues. But that wasn’t always the case in Massachusetts.
As I mentioned in this recent post, giving time to your special needs child’s siblings each day is important. But what happens when emergency strikes? How do you balance time with each of your children when a hospitalization or medical emergency comes into play?
World Autism Awareness Day March 31, 2017 United Nations, New York City “All human beings are born free and equal in dignity and rights.” – Article 1, Universal Declaration of Human Rights