This week, our son Jack returned to school after 6 months of medical leave. In November 2016 he developed an infection that led to PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). As time went on, we learned that strep was not the only trigger for the flares, and he was diagnosed with both PANDAS and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), […]
The most recent launch of Exceptional Lives Louisiana was featured on WVLA Local33 | WGMB Fox44 on August 9, 2017. In partnership with the Baton Rouge Area Foundation, Exceptional Lives Louisiana offers families and caregivers of people with disabilities easy-to-understand, actionable information and support.
Around the United States, families are getting ready for the first weeks of school. Our family is in the middle of helping our oldest son re-enter mainstream school after a semester of medical leave, while also preparing our daughter to begin kindergarten. As soon as August arrived, we felt the stress rise.
My child was diagnosed with a disability over the summer. I’ve been reading about IEP and 504 plans but can’t figure out the difference. Can you explain?
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.
This week, we received a secondary diagnosis for my son. It’s been a very hot week. It’s the end of the school year. He’s going through a growth spurt. Is everyone getting enough sleep? I think there’s too much sugar in our diets. We should probably cut back on screentime. Physical play is always good. […]
When our son Jack developed a mysterious illness in November of last year, our world turned upside down. Our once funny, vibrant, energetic boy could hardly get out of bed. Within a few short weeks, he was no longer able to attend school or participate in activities he had once loved. Over the course of […]
I learned early in my career as a child development therapist that the parent is the expert about their child. When a child and parent came into my office for visual spatial/cognitive therapy, or when I went to homes to provide DIR/Floortime, I thought about this parent-as-expert concept. I’ve always been drawn to supporting parents […]