This week, our son Jack returned to school after 6 months of medical leave. In November 2016 he developed an infection that led to PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). As time went on, we learned that strep was not the only trigger for the flares, and he was diagnosed with both PANDAS and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), […]
“He has difficulties with self-regulation.” What does that mean? I’ve been thinking a lot about self-regulation. It is a term I see more and more on IEPs, psychology reports, and in education forums. What is self-regulation and why is it so important?
Around the United States, families are getting ready for the first weeks of school. Our family is in the middle of helping our oldest son re-enter mainstream school after a semester of medical leave, while also preparing our daughter to begin kindergarten. As soon as August arrived, we felt the stress rise.
We All Have Good Intentions Do you keep books around that you will someday get to? I have a heap of books encouraging excellent intentions to learn, absorb, and generally ‘be better.’ I collect books that interest me as both a parent and professional. Books that will answer my parenting questions and solve all of […]
Three years ago, I was pregnant with our youngest of three. We lived in a small house with many diagnoses under one roof‑including autism, ADHD, a connective tissue disorder, hypotonia, anxiety, Crohn’s, Celiac’s, and severe food allergies. Many of the diagnoses were new and we had upwards of sixteen therapies and appointments per week to […]
There is judgment that comes with being a parent. There is judgment that comes with being a parent of child with special needs; a child who continually throws sand at the playground, can’t sit during mealtime, doesn’t answer when you ask a question (over…and over….and over again), or kicks and screams when things don’t go […]
But, I just poured my coffee. You know that feeling when you pour that first cup of hot coffee in the morning? The mug warming your hands while you breathe in the rich aroma and gently ease into your day. No, you don’t remember that? That’s probably because you’re a parent. You may relate […]
At the beginning of December, the U.S. House passed a bill that would provide funding for tracking devices and resources to help kids with autism and other developmental disabilities at risk of wandering. The bill known as the Kevin & Avonte’s Law is one step closer to becoming Federal Law.