Holidays are a time for family and gratitude. For family members who we see only a few times a year, it can be hard for them to understand our unique experiences as parents of children with disabilities – and it can be easy for them to make judgment on us, our relationships with our […]
Supported decision-making is an alternative to guardianship. It allows a person with a disability to make their own decisions with support from a team of people they trust instead of having someone else make decisions for them.
How many times have you said those words only to wonder how ‘fine’ you really are? Sometimes “I’m fine” because that is what I want to be, sometimes it’s because I think that’s what others want me to be, and sometimes it’s just the easiest response. Most times, it’s true: I am fine. Of course […]
Last year, I sat next to an older man on a plane. We kept to ourselves for most of the flight, but as we started to make our descent, we picked up easy conversation. It was my first time to Louisiana and I was curious and excited to see a different part of the country. […]
Everybody loves to win. Children naturally infuse winning into their day; “First one to the slide gets (fill in the blank)”, “My (fill in the blank) is (better, bigger, stronger) than yours!” I’ll admit, as a mom, I do it too! I almost always regret it, but when the three boys take on sloth-like qualities […]
Why special needs families need help: Before I became a parent, I thought a little extra hard work would be enough to make it through the valleys of parenthood. When I became a special needs parent, goodness, I realized how wrong I was.
1. You are an expert in your child You know your child best. You have watched your child grow, tracked milestones, and sought help when your parental instinct told you something might not be quite right. You know the techniques that will calm an outburst, the language that will get your child back on task, […]
Last week my son stood up on skates for the first time on his own. I cannot express the intense emotion that swept over me at that moment, but I suspect you know the feeling. Pride, joy, love, glee. It isn’t the skating part that I care about. It is the perseverance and determination. Despite […]