Video Interviews

Families and Stories: Testimonials from Parents of Children with Disabilities

The Families and Stories Campaign is a series of interviews that feature parents of children with disabilities. With topics ranging from transition to adulthood for youth with disabilities to child development milestones, parents, caregivers, and children share their individual joys, fears, and struggles with caring for and being a young person with disabilities.

We know the journey can feel isolating; our Families and Stories Project amplifies the voices of families like yours and builds a community among us. We are here to help.

Corhonda & Corinth

At the age of 3, Corinth, who has Spina Bifida, was ready to start school. Read about Corinth and his mom’s journey from diagnosis to school.
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Shubha, a person of color smiling with their son, whose face is blurred for privacy reasons.

Shubha & A

Shubha Balabaer is a Canadian in Brooklyn. They care for their autistic child while challenging societal gaps and advocating for inclusion.
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Mother (white woman) and son (white child) standing side by side smiling

Tanja & Andy

Transitioning into adulthood can be intimidating for any family. Adding a disability to the mix can make things even more daunting, but it doesn’t have to be. Tanja made sure she prepared her autistic son, Andy, for life on his own after college.
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Mother holding her smiling son and kissing him on the cheek.

Neda & Mason

Some parents suspect their child might be autistic at an early age, especially if they know what to look for. As a neonatal nurse, Neda knew the warning signs when it came to her son Mason’s developmental milestones and knew right away that something was different.
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Father (white man) and daughter (white woman) smiling with daughter’s hand on father’s chest

Rob & Schuyler

Have you heard of Polymicrogyria (PMG)? Schuyler was diagnosed with the disorder at birth. PMG is a condition characterized by abnormal development of the brain before birth and affects Schuyler’s speech, learning ability, and can cause seizures. While schools are required to provide accommodations for those with disabilities, the real world can be slow to get on board.
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Maurice, a Black man sitting in the car smiling with Maurice Jr.., his Black son

Maurice & Maurice Jr.

Maurice Jr. is the first of 3 children and only son of his father Maurice Rush. After Little Rece’s diagnosis as autistic, his father learned how to become a strong advocate for his non-speaking son.
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Black mother smiling with her daughter in front of greenery

Miranda and Magnolia

Meet Miranda Georgetown Riley, founder of the Magnolia Rose Foundation and mother of Magnolia Rose Riley. At 18 months old, Magnolia was diagnosed with autism and while she did not exhibit all of the typical signs of autism, her mom knew that something was different because she was non-speaking. After getting a diagnosis, Miranda immediately knew she needed to do all that she could to get her daughter early intervention and began her quest to get help.
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Black woman(mom) sitting next to her black daughter smiling.

Kisha and Kirsten

Becoming a 19 year old single parent of a child with a disability was a challenge that Kisha was not prepared for, but she quickly adapted to support her daughter’s needs. In this Families and Stories interview, Kisha emphasizes the importance of taking the time to learn to effectively communicate with medical professionals and balancing boundaries with family to create a healthy environment for her daughter Kirsten.
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Johnny & Jonathan

Transitioning into adulthood can be a daunting experience, especially for those with disabilities. Jonathan’s parents took advantage of his father’s role at a local community college and enrolled their son as a part-time student to continue their journey to prepare him for life after high school.
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