Planning the transition to adulthood: Life with disabilities after high school.
If your child has a disability, you may be wondering how to get them ready for the transition to adulthood. Here are the tools you need.
Getting your child ready for adulthood is hard. If your child has a disability, it may be a little more complicated.
If you’re caring for a teen with a disability, it can be overwhelming to think about their transition to adult life. There are many ways to prepare during high school through their IEP and transition planning. You also might need to consider applying for benefits and learn about the options for guardianship or other support. It can be hard to picture what their life will look like without the services and support that the school system provides.
We’re here to help you understand what to do and when to do it, and to give you the tools to help your child grow into an adult who can live their best possible life.
How do I support my teen with a disability in making the transition to adulthood?
To get started, read more about each of the steps your teen may need to take for a successful transition. We’ll walk you through transition planning, testing and assessments for students with disabilities, and the different paths they can take to get ready for what comes next.
We’ll also tell you what you need to know and do before your child turns 18 and how you can prepare your child to be their own best advocate.
Tests given to all students to check their progress in school. Students with disabilities may need accommodations for these tests, which should be written in the IEP or 504 Plan. Certain students may need alternate assessments, depending on their disability. Your state’s grade level performance assessments may have different names, like MCAS in Massachusetts, or LEAP 2025 in Louisiana.
Individual Graduation Plan (IGP)
A plan that describes a student’s path through high school. It includes what courses they will take and how the teachers will assess their performance. The IEP team will work together to create an IGP that fits the student’s goals.
A detailed plan to help a child with a disability meet their goals for after high school. For all students with an IEP, the Transition Plan should be written by the team (including parents or guardians and the student) by age 14-16.
Adult Transition Timeline
A timeline for your teen’s transition to adulthood
If your teen has an Individualized Education Plan (IEP), they will start a formal transition process with the school system when they are 14-16. This will help them get ready for life after high school.
In the transition process, you and your child will identify their goals for after high school. The school will identify what kind of support they will need to get there. As their parent or caregiver, you will be with them every step of the way.
Middle school and beyond
This is the time to start talking with your child about what they want to do after high school. Does the IEP support their goals? What does their pathway to graduation look like? Here’s how to get started.
Early High School: ages 14-16
Now is the time to start the official transition planning process. The IEP team will begin transition assessments and job preparation activities with your teen. What kind of support do they need to reach their goals? Here’s how to make your plan.
Late high school: ages 17 until high school is complete
This is where the transition gets real. It’s time to prepare for the transfer of rights when your child turns 18. They will also start to connect to adult service agencies and begin applying to college or training for work. Here’s what you need to know.
Beyond high school: ages 19-22+
Your student may still be finishing high school. It’s time to secure adult support services and resources, including supported housing, if needed. Here’s what to do.
Parent and professional perspectives on one of the biggest transitions your child will make.
Our blogs, videos, and podcasts offer a parent perspective on the joys, challenges, and work of helping our children transition to adulthood.
Our short videos offer quick tutorials from educators and providers on how to help your child navigate everything from college disability services to learning how to manage an apartment.
What job skills do employers look for? Prepare your child for the workforce with job skills training for young adults with disabilities.
If your child with disabilities is getting ready for college, you may be wondering what skills they need. This 2-minute video with advice from Fred Johnson of Collegiate Academies in New Orleans will point you and your student in the right direction.
Is your teen able to advocate for themselves? Learn how young adults can overcome the fear of self-advocating in this two minute video.
If your child has a disability, it might be hard to envision how they will transition to adulthood. Here’s how to set them up with the support they need for adult life.
At age 22, young people with disabilities age out of special education. In this podcast, Exceptional Lives Team member Julie talks about her son’s transition and how she is learning to support him in this new part of his life while she learns to let go. Narrated by Christina Kozik; Written by Julie McKinney
The transition to adulthood is hard. For kids with disabilities, it can bring extra challenges. In this podcast we talk about how to help our kids get ready.Narrated by Christina Kozik; Written by Julie McKinney
Frequently Asked Questions about the transition to adulthood
Preparing for your child's transition from school-based services to adulthood can be tough. It's okay to have questions! Here are answers to a few of the ones we hear the most.Contact us
If your child wants to go to work after high school, their IEP and transition plan should include their employment goals and the support they need to meet them. During high school, they can get job readiness training, learn specific job skills and explore different career paths. They can also work with vocational programs and get training through internships both during and after high school.
The best way to teach your teen to advocate for themselves is to make sure they are as involved as possible in their transition process. This includes IEP meetings, goal-setting, transition planning, and – of course – learning from you. Get some tools for teaching self-advocacy.
If your child has significant disabilities, it’s important to think about benefits, services, and help at home or other supported housing once they leave high school. This may include Social Security, Medicaid, guardianship, and state agencies that support adults with disabilities.
If your child is planning to go to college, you should make sure that their IEP and transition plan include their goals and the support they need to get there. You’ll also want to work together on their social skills, study skills, and self-advocacy skills. And it’s worth learning how colleges can support students with disabilities once they get there.
Transition for teens with disabilities means the process of moving from school-based services to life after school. Students with an IEP can get services from the school system until they turn 22 or graduate, whichever comes first. The transition planning process should start by the time they turn 16, though often it begins earlier.
When your child turns 18, you can no longer make legal and medical decisions for them. If they will need decision-making support, you can explore options like guardianship, supported decision-making, and health care proxies. They may also need to re-apply as adults for benefits like SSI and Medicaid, even if they are already getting them. Here’s how to prepare for the transfer of rights at age 18.
Transition assessments are designed to identify your child’s career interests, job readiness skills, strengths, and areas where they need more support. These usually include formal assessments like aptitude tests or career interest surveys, and conversations with your student. In some cases they may assess your child’s skills for a specific job or career.